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Copy of a paper written by Paul Wainwright titled "Consent to open label Extensions Studies: some Ethical Issues" with Hazel Thornton's annotations.

Hazel Thornton: Archive

Papers and literature

Reports and Papers

The Academy of Medical Sciences "Identifying the environmental causes of disease: how should we decide what to believe and when to take action"

Adrian Edwards Thesis

"Addressing and Ethical Dilema in Randomised Controlled Clinical Trials"

Arimidex, Tamoxifen, Alone or in Combination Trial

"Can the Impact of Public Involvement in Health and Social Research be Evaluated"

Cancer Colaboration Improving Cancer Patient Care: The Workforce and Training Implications of the Calman/Hine Cancer Report

"Using a Consumer Advisory Group to Increase Accrual into Trials"

Cardiff University: Shared Decision Making

Central Sydney Area Health Service: Needs Assesment & Health Outcomes Unit

Clinical Trial Information for Consumers and Glossaries

Cochrane Consumers and Review Group: Recruitment Into Primary Care Trials

Consumer Concerns: a consumer view of health services the report of an RSL survey, National Consumer Council

Consumer Involvement in Health Research Database

Checklist for Patients on Endocrine Therapy Pilot Reports

Damocles

"Development , Implementation and Evaluation of Science Training Course for Breast Cancer Activists"

"Diffusion and Dissemination of Evidence Based Cancer Control Interventions"

Database of Individual Patient Experiences Breast Screening Module

"Does Evidence-Based Information About Prostate Cancer Screening Inform Men Without Exacerbating Worry? A Randomised Controlled Trial."

"Enhancing Citizen Engagement in Cancer Screening Through Deliberation Democracy", Sydney School of Public Health

"Ethical Issues in the Design and Conduct of Randomised Controlled Trials A Systematic Review"

"Future Imperfect? Report of the Kings Fund Care and Support Inquiry"

Patient Involvement in Education of Medical Students

'Good Clinical Practice' Guidelines

Governance Arrangements for NHS Research Ethics Committees

Health Authorities Bill and Radiotherapy Action Group Exposure

Health Select Committee, Breast Cancer Service Enquiries, Papers and Evidence

Health Technology Assesment Programme, Comments on Systematic Review

"How People Use Written Health Information in Decisions About Their Treatments and Health Care"

"Impact of Cancer-related Decision Aids: An Evidence Report"

Impact Report: African Medical and Research Foundation

Information and Report Booklets on Human Genetics

International Breast Cancer Intervention Study

INVOLVE papers

Mapping Good Practice in Communication Skills (Worth Media)

Medical Research Council Consumer Subgroup

Methods of Involving Healthcare Consumers in Identifying and Prioritising

National Cancer Research Institute: "A Framework for PET Research in the UK"

National Randomised Trial of Hormone Replacement Therapy

NICE Citizens Council Report; "Only in Research", Mammoraphic Screening for Breast Cancer and the Advisory Committee on Scientific Advances in Genomics

National Breast Cancer Study of Epirubicin and CMF v Classical CMF Adjuvant Therapy and Axillary Lymphatic Mapping Against Nodal Axillary Clearence Protocols

NHS Executive - The Evaluation of Methods to Promote the Implementation of Research Findings

NHS University: Communicating Skills Programme

ORACLE Children's Study

Participants Assessment of Clinical Trials

The Pathophysiology of Recurrent Female Pelvic Organ Prolapse, and de Novo Stress Urinary Incontinence after Vaginal Prolapse Surgery

Patient Choice and the Quality of Life Care in the Treatment of Breast Cancer

Patient Information Sheet and Consent Form

'Patient Involvement in Clinical Trials' and 'Service User Involvement in Clinical Trials for Breast Cancer Treatment' by Hazel Thornton

Patient and Service User Priorities fro and NHS University Induction Programme

Patients' Veiws of Participating in a Pilot Study of HRT Use After Breast Cancer

Personal Information in Medical Research, Draft Medical Research Council Guidlines

Professional Attitudes and Attributes to Support the Strategic Objectives of the NHS

Prostate Cancer Screening - Too Much Too Soon: an Invited Review

"Randomized Clinical Trial of Hormone Replacement Therapy (HRT) in Symptomatic Patients With Previous Breast Cancer - A Feasibility Study" and other HRT Articles.

Report of the Accreditation Panel for Specialist Breast Cancer Services

Report on Project NCP/D18

Report of a Seminar on PSA Testing in Avon

Report from University College London on Endocrine Treatment

Reports of the University of Mid Glamorgan Citizen's Jury on Genetic Testing for Common Disorders

Research Governance Honorary Contracts

'Response on Behalf of the Authors of 'Testing Treatments' to Ana Rosengurtss's Email', 'Comments on Editorial for the European Journal of Surgical Oncology "The Ethics of Randomised Controlled Trials', 'Patient and Public Choice? "Screening as a Commodity" or "Continuity, Personal Concern and Restored Trust"?' and other papers.

Response to the Consultation on the Additional Uses of Patient Data

Service Delivery Organisation - NHS (SDO)

Shared Decision Making Within the Primary Care Consultation: Patient and Professional Perceptions of the Construction and Uses of Medical Information

"Should Women Be Advised Against Pregnancy Subsequent to Breast Cancer Treatment" and "The Monitored Body Culture and Medical Testing"

Summary of Responses to the Consultation on the Additional Uses of Patient Data

Trial Leaflet Evalation Tool

University of Hull Institute of Nursing Studies Dissertation. Women's Knowledge of and Attitudes Towards Chimed Trials Amoungst the General Public Regarding Breast Cancer

"The Veiws of Women in Breast Cancer Support Groups on a Propsed Clinical Trial of HRT Use After Breast Cancer"

Wellcome Trust "Towards Consensus for Best Practice"

Your Osteopathy: Getting Your Professional Message Across to GPs and PCGs

"Consent to open label Extensions Studies: some Ethical Issues"

"Consent to open label Extensions Studies: some Ethical Issues"

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